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Discussion Starter #1 (Edited)
We all know based on the reports that I got on my heart I bought the trike. And I'm good. All settled in to it. So in the last 11 days I've spent 7 in the hospital. And still have minimum of 3 more. This is mainly due to infection. Not heart function. Today he swapped out the ICD and cleaned out the entire pocket. Just before the surgery he said I'm not out of the woods yet. We may have to remove all the wiring too. That's major surgery. But what he said next completely fucked me up. And I've not questioned it.

He said if we take it all out he may not put it back in. My heart is very strong. But he said he'd have to think long and hard about it.

I just fucking got rid of my dream bike. And now that seems to not have needed to happen. What a mind fuck.

I already told the old lady. If he says the defibrillator is not needed. I'm trading her trike in on a RGS and she can have my Freewheeler. she was silent. But fuck! What am I supposed to think here. I'm confused.

Now before we trash my Doctor. This guy is the doctors doctor. No one is rated higher. And the care he is giving me now makes me believe I have the best doctor for what's going on.
 

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WOW, that is a mind F**K! What about the reports that it went off previously...inaccurate? Sure hope this gets right for you and you heal up quickly. Sounds like a day in the wind is what "the Dr" ordered! Take care!
 

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I know what you are going through. I had a heart episode 4 years ago when my heart got stuck in high Afib. My heart was pumping at 180bpm. This basically weakened my heart and put me into heart failure. Drove myself to the hospital as I just did not feel right and a team of doctors all decided that I needed a new heart and were calling in the airlift crew to fly me to a heart transplant facility. They had me fly my wife in (I work in Michigan and she was in Florida) "as it was time". I looked at them all and tell them I am not being flown anywhere. From the back of the room a Dr. I have not seen before, walks up and tells everyone else that I am not going anywhere and he will have me fixed in two days. Two days later, I am being discharged from the hospital.

The new Dr. figured since I am in above ave shape, and that it was a trigger event more than damage that caused the heart failure, that I should be able to recover with the right mix of meds. Needless to say, he ended up being correct. There were talks of defibrillators, pacemakers, ablations, and all sorts of things to "make me function better". In the end, he told me to just trust the meds, trust how I feel, and DO NOT REST. Get up every morning and do something, and get my heart working more and more each day.

Its been 4 years and I am nearly fully recovered. My heart is now functioning just below normal and they say it will never function normal again. I am now in persistent Afib, and honestly, I can't tell anymore and I rarely ever think about it.

The whole reason for telling you this is because things change. Dr's are now rethinking about the over use of heart equipment as there have been great strides in some of the new meds to correct abnormal heart function. I am not saying we are in the same situation or have the same issues, but to just keep an open mind and always keep fighting. By your picture, you look a little on the weak side so this may be difficult for you. :) JK

I wish you all the best, and hope you keep your spirits up. Trike or RG, just get out there and enjoy the wind in the face.

Be strong!
 

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Hope it all works out either way ...

I could not deal with being in hospital that long ..

My birthday weekend five years ago , I was in from Friday afternoon till Monday morning , went crazy ..

JtB
 

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Man, that's rough.. With his credentials, it would be nice to have blind faith, but... damn.

I learned to always get a second opinion when I had a doctor want to do thoracic surgery on me. I had a stroke during a humpty dumpty surgery. My sister recognized the symptoms, doctors wouldn't acknowledge the fact until she crawled up their ass and they did a scan. Their initial goto was thoracic surgery, fucking VA. I was high as a kite for a period of 2 years, so I was "ok".
Family said, "no way".

I went outside the VA for second opinion and they couldn't reverify the findings. Stroke free for 13... Hell, I'm getting a beer.

At the time, it might have been the right call to stick the electronics in you, now he's seeing something different. Run with the good news and enjoy the ride. You won't want your bars back.. will you.......?
 

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Discussion Starter #7
Happy for you everything seems evolving all right for your health, the rest is only money, it just come and go....
You're right. And if I decide to stay on 3 wheels. It was my decision. No one else's.

WOW, that is a mind F**K! What about the reports that it went off previously...inaccurate? Sure hope this gets right for you and you heal up quickly. Sounds like a day in the wind is what "the Dr" ordered! Take care!
Soon enough. I told the guys ad of right now I'm going to Maine.


Man, that's rough.. With his credentials, it would be nice to have blind faith, but... damn.

I learned to always get a second opinion when I had a doctor want to do thoracic surgery on me. I had a stroke during a humpty dumpty surgery. My sister recognized the symptoms, doctors wouldn't acknowledge the fact until she crawled up their ass and they did a scan. Their initial goto was thoracic surgery, fucking VA. I was high as a kite for a period of 2 years, so I was "ok".
Family said, "no way".

I went outside the VA for second opinion and they couldn't reverify the findings. Stroke free for 13... Hell, I'm getting a beer.

At the time, it might have been the right call to stick the electronics in you, now he's seeing something different. Run with the good news and enjoy the ride. You won't want your bars back.. will you.......?
Lol. Open. Those bars are yours brother. Did you get them on yet?

I know what you are going through. I had a heart episode 4 years ago when my heart got stuck in high Afib. My heart was pumping at 180bpm. This basically weakened my heart and put me into heart failure. Drove myself to the hospital as I just did not feel right and a team of doctors all decided that I needed a new heart and were calling in the airlift crew to fly me to a heart transplant facility. They had me fly my wife in (I work in Michigan and she was in Florida) "as it was time". I looked at them all and tell them I am not being flown anywhere. From the back of the room a Dr. I have not seen before, walks up and tells everyone else that I am not going anywhere and he will have me fixed in two days. Two days later, I am being discharged from the hospital.

The new Dr. figured since I am in above ave shape, and that it was a trigger event more than damage that caused the heart failure, that I should be able to recover with the right mix of meds. Needless to say, he ended up being correct. There were talks of defibrillators, pacemakers, ablations, and all sorts of things to "make me function better". In the end, he told me to just trust the meds, trust how I feel, and DO NOT REST. Get up every morning and do something, and get my heart working more and more each day.

Its been 4 years and I am nearly fully recovered. My heart is now functioning just below normal and they say it will never function normal again. I am now in persistent Afib, and honestly, I can't tell anymore and I rarely ever think about it.

The whole reason for telling you this is because things change. Dr's are now rethinking about the over use of heart equipment as there have been great strides in some of the new meds to correct abnormal heart function. I am not saying we are in the same situation or have the same issues, but to just keep an open mind and always keep fighting. By your picture, you look a little on the weak side so this may be difficult for you. :) JK

I wish you all the best, and hope you keep your spirits up. Trike or RG, just get out there and enjoy the wind in the face.

Be strong!
Thank you for that. It helped.
 

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Damn brother, that is a head fking to say the least. But it sounds like he is The Man and is truly looking out for your future. Sadly our motorcycle obsession is not shared by all, and I am sure he didn't mean for you to make drastic decisions on motorcycles that you own. The Dude upstairs has a master plan, and it sounds like yours is living long. I look forward to reading of your new RGS.
 

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Get healthy as you can sort out the bike stuff latter. You can always get attached to another dream bike . Year and a half ago the VA doc said I had cancer it was for sure. Told him we would finish out ride and see him when we got back. Told my wife I was not doing anything until it was sorted out turns out he was mistaken.
You may learn to enjoy that trike .
 

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Get healthy as you can sort out the bike stuff latter. You can always get attached to another dream bike . Year and a half ago the VA doc said I had cancer it was for sure. Told him we would finish out ride and see him when we got back. Told my wife I was not doing anything until it was sorted out turns out he was mistaken.
You may learn to enjoy that trike .
 

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So I can understand where you're coming from, but at the same time I am a firm believer that things happen for a reason. It is not up to us idiot humans to understand WHY, but often times it is revealed to us later. You were guided down a path that you resisted, then embraced (think 12 step programs here) and now you potentially have the opportunity to resist or embrace again. If I were you, I would stick with what you have and keep making it your own. Unless you've been blowing smoke up our arses, it sure seems like you have taken a shine to your new wheels. I know you loved your twinkie, and that would be hard to have to give up your dream bike, but you can still have a just as much fun (if not more) on the trike!

Come to Jesus meeting here... you're not getting any younger, and things with your heart seem fairly uncertain/unpredictable. The trike might not have been the best option in your mind right now, but it sure as hell isn't going to hurt having it for later! You and your wife have found a common bond with the trikes and you have all sorts of great ideas for both of them. You've already learned a lot of the ins-outs of the trike and how to ride it. You've put on the miles. You have started to "own" it.

I guess what this all boils down to is this...


...


...


...


Don't turn into SteadyEddie.
 

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Discussion Starter #12
So I can understand where you're coming from, but at the same time I am a firm believer that things happen for a reason. It is not up to us idiot humans to understand WHY, but often times it is revealed to us later. You were guided down a path that you resisted, then embraced (think 12 step programs here) and now you potentially have the opportunity to resist or embrace again. If I were you, I would stick with what you have and keep making it your own. Unless you've been blowing smoke up our arses, it sure seems like you have taken a shine to your new wheels. I know you loved your twinkie, and that would be hard to have to give up your dream bike, but you can still have a just as much fun (if not more) on the trike!

Come to Jesus meeting here... you're not getting any younger, and things with your heart seem fairly uncertain/unpredictable. The trike might not have been the best option in your mind right now, but it sure as hell isn't going to hurt having it for later! You and your wife have found a common bond with the trikes and you have all sorts of great ideas for both of them. You've already learned a lot of the ins-outs of the trike and how to ride it. You've put on the miles. You have started to "own" it.

I guess what this all boils down to is this...


...


...


...


Don't turn into SteadyEddie.
Holy fuck. I was all sucked in. Yep. Hes right. I'm not blowing smoke. I'm learning to love this. Blah, blah blag. Then BLAM! I laughed so fucking hard the line on my heart monitor jumped and beeped.

But seriously. the previous two paragraphs. they're dead on.

I truly appreciate you guys. I was angry and full of regret while shopping for a new RGS this morning. Hating everything I seen. Then I figured I needed some truth from the collective. I'm glad I did. Depends on the 2020 color combinations. Lmao.
 

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Discussion Starter #14
There is a lot worse news you can get than you might be healthier than you thought and you might be "forced" to trade up to a 2020 Road Glide!
One simple paragraph and I'm a shallow asshole. Good looking out Geo. Lmao. :grin:
 

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We might have to start calling you Steady Eddie Jr. :) :)
I thought you were digging the trike , no ?? Trikes are cool, even more so with a Shark nose on it. You'll be almost a one of a kind.
I'd think hard before losing money before you switch back.
Either way good luck and God speed with your health and healing up.
 

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Discussion Starter #17 (Edited)
We might have to start calling you Steady Eddie Jr. :) :)
I thought you were digging the trike , no ?? Trikes are cool, even more so with a Shark nose on it. You'll be almost a one of a kind.
I'd think hard before losing money before you switch back.
Either way good luck and God speed with your health and healing up.
Been in the hospital since Tuesday morning. I'm at boredom level 10,000. I'm not thinking right. Well, as right as right is for me. And I just got a shot of dilaudid. So I'm loopy.

But my dealer just offered me an insane deal on a 2019 RGS. He didnt say the color. Just the year and model. I told him nope I'm not a fan of the Billiard blue. lol. I knew it. That color isn't moving. I think I'd buy a standard with ABS and security before I bought a blacked out Special.
 

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John, it sounds like you've got a terrific Dr. and that you trust him. That would be the whole key to this for me. If you trust him/her, there's not much else to do other than to follow his/her plan for recovery. If you don't trust him, (after all it IS your life) fire him and find one you do. I was diagnosed with a blood disorder that would eventually kill me if something else didn't get me first. It's called hemochromatosis and it is controllable to a degree, through phelebotomys. The blood disorder causes my body to manufacture and retain much more iron than others. A normal iron (feritin) count is supposed to be somewhere between 10 -150 and when I was first diagnosed it was 1,500! In the beginning I had to get pint blood draws every week for a year or more, then every 2 weeks for a couple years, and eventually to once every 60 days. If I went in and had a blood draw every 60 days it kept my iron level in the middle of the desired range at around 70. All this went on for more than 150 pints before I moved to Florida. I've been here 3.5 years now and my feritin, as tested last week, was 40. I've not had a single draw since I got here and yet my feritin level is the best it's ever been. Even the specialist has no explanation as to why this happened, but the main thing here was that I had a Dr. I believed in and followed his directions on treatment by the numbers, and now I no longer have to worry about the disorder at all.

Have faith in your Dr. or fire him. Once you have one you have faith in - just do what he instructs you to do and let his treatment plan work for you . Best of luck, I know it's a bit of a cluster for you right now, but just sit back and relax a bit and don't make any important decisions until all of this settles down. Best of luck to you, I'll have a good thought for you.
 

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Discussion Starter #19
John, it sounds like you've got a terrific Dr. and that you trust him. That would be the whole key to this for me. If you trust him/her, there's not much else to do other than to follow his/her plan for recovery. If you don't trust him, (after all it IS your life) fire him and find one you do. I was diagnosed with a blood disorder that would eventually kill me if something else didn't get me first. It's called hemochromatosis and it is controllable to a degree, through phelebotomys. The blood disorder causes my body to manufacture and retain much more iron than others. A normal iron (feritin) count is supposed to be somewhere between 10 -150 and when I was first diagnosed it was 1,500! In the beginning I had to get pint blood draws every week for a year or more, then every 2 weeks for a couple years, and eventually to once every 60 days. If I went in and had a blood draw every 60 days it kept my iron level in the middle of the desired range at around 70. All this went on for more than 150 pints before I moved to Florida. I've been here 3.5 years now and my feritin, as tested last week, was 40. I've not had a single draw since I got here and yet my feritin level is the best it's ever been. Even the specialist has no explanation as to why this happened, but the main thing here was that I had a Dr. I believed in and followed his directions on treatment by the numbers, and now I no longer have to worry about the disorder at all.

Have faith in your Dr. or fire him. Once you have one you have faith in - just do what he instructs you to do and let his treatment plan work for you . Best of luck, I know it's a bit of a cluster for you right now, but just sit back and relax a bit and don't make any important decisions until all of this settles down. Best of luck to you, I'll have a good thought for you.
Hope you're fully under control. I know exactly what you have.

I absolutely trust my doctor. he is the doctor the doctors go to. Cant ask for much more than that.

Waiting on the numbers for the Billiard Blue 2019 [email protected] with the 114" lol.
 

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Sorry, you have another hiccup in your recovery john. What a great opportunity to slow down a little and appreciate what you've got.

A little time might answer some of the questions you have.

Dilaudid, internet and too much empty time on your hands=bad combo.
 
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